We are so thankful to everyone who has helped share our story and spread awareness for Charcot-Marie-Tooth Disease.

We were told there's 'no cure' for our son's rare disease, so our work is to find one

Good Morning America

Nov 24, 2021

UHealth Geneticist Discusses Genetic Therapy for CMT4B3

University of Miami Rare Disease Day

March 1, 2022

Scarsdale Volunteer Fire Fighters Contribute To Medical Research To Help Child with Rare Disease

Scarsdale10583

December 13, 2022

I’m Now On Team Hunter Schultz

DigiDame

December 25, 2022

Fill the Boot Event Raises $76,000 for Rare Degenerative Disease

Scarsdale10583

May 03, 2022

Scarsdale family races against time to help find cure for son's rare disease

News 12

Nov 29, 2021

We Stand With Hunter

Hunter’s Story

September 22,2021

‘It’s ultra rare. There are only 14 cases worldwide. Brace yourselves for what you’ll read on the internet.’: Mom advocates for son with rare Charcot-Marie-Tooth Disease

Love What Matters

December 13, 2022

Play for a Cure to Fund Research for Charcot-Marie-Tooth Disease type 4B3

Scarsdale10583

May 17, 2023

Hunter’s cure hunters

Scarsdale Inquirer

September 23, 2021