NEWLY DIAGNOSED
Newly Diagnosed?
TWO THINGS WE WANT YOU TO KNOW
1. YOU ARE NOT ALONE
You’ve just joined a global family of CMT4B3 patients and their loved ones, all united by a shared goal: finding a cure. We understand what you’re going through because we’ve been there, too. Whether you need support, guidance, or just someone to talk to, we’re here for you every step of the way.
2. THERE IS HOPE
We live in an era of medical breakthroughs, and the search for treatments—and even cures—is advancing rapidly. At the forefront of CMT4B3 research, we are determined to bring new hope and better outcomes for every CMT4B3 patient. Together, we won’t stop until every patient has the chance for a better life.
SIGN UP FOR OUR DIGITAL PATIENT REGISTRY
Join our community on Citizen - take five minutes to help accelerate research and help us reach our goal!
All U.S.-based families are eligible! We are asking them to sign up for Citizen Health to help power digital natural history studies for our community!
By participating, you will be part of something truly meaningful: a chance to contribute to vital research that could change the future of care for so many families like ours.
There’s no cost to participate, and it should only take five minutes of your time! As part of signing up, Citizen will collect all your medical records and provide you with access in your secure, digital profile - giving you the option to share your medical history with whomever you choose safely and easily, and finally making it possible to have all your health data in one place to help inform your care journey. Your involvement is crucial to moving our community forward.