NEWLY DIAGNOSED
Newly Diagnosed?
TWO THINGS WE WANT YOU TO KNOW
1. YOU ARE NOT ALONE
We are a worldwide team of CMT4B3 families dedicated to finding a cure and supporting you along this journey. We have all been where you are now and we understand all the emotions you are experiencing. You have a CMT4B3 family to support you.
2. THERE IS HOPE
We are living in a time when diseases are being cured. There are new treatments being developed for conditions like ours and we are at the forefront of the research for CMT4B3. We will stop at nothing to give all CMT4B3 patients the life they deserve.
JOIN THE NEUROGENETICS REGISTRY FOR CMT4B3
The Motor Neuron Diseases Research Laboratory (MNDRL) at Nemours/Alfred I. duPont Hospital for Children, directed by Dr. Matthew E. R. Butchbach is currently recruiting families affected by CMT4B3 into our neurogenetics registry study.