TOGETHER WE CAN MAKE A DIFFERENCE

Hunter is battling Charcot-Marie-Tooth Disease Type 4B3, a rare progressive neuromuscular disorder with no cure or treatments. By working to find a cure, Hunters CMT4B3 Research Foundation will bring hope to thousands of children suffering from early onset peripheral nerve diseases.

Hunter’s parents, Iris and Brett Schultz were told there are no treatments or cure for CMT4B3, and Hunter would eventually lose his mobility, and potentially go deaf and blind. Research and funding for CMT4B3 is virtually nonexistent. Not willing to simply watch their son deteriorate before their eyes, they founded “Hunters CMT4B3 Research Foundation” to find a cure for Hunter and all children suffering from CMT4B3 and related neuromuscular diseases. 

1 in every 2500 people have CMT, an estimated 150,000 in the U.S. and 3 million worldwide. The same amount as Multiple Sclerosis (MS) and considerably more than Lou Gehrig Disease (ALS).
Please donate to help us fund laboratories to research therapeutic treatments for CMT4B3.

GENE THERAPY

DRUG REPURPOSING

MODELS OF THE DISEASE